ARCHIE’S AUTISM JOURNEY #6 | CLOSER TO DIAGNOSIS

We had Archie’s second paediatrician appointment on June 2nd, I don’t know why it’s taken me so long to write this post. Maybe I was subconsciously holding back, maybe I needed time to process everything, maybe it was the fact that it’s really starting to feel real now. So much has happened since his first appointment almost seven months ago, the first time a Specialist confirmed the suspicions of Autism.

This was the first time we’d seen this Paediatrician, she’s a specialist in Delayed Development, Communication Issues & Autism and you could tell pretty much straight away that she had really done her reading of Archie’s file, with updates & assessments from Speech & Language, the Health Visitor, nursery & the previous paediatrician. She knew so much about his developmental issues & Autistic traits, asking us to expand on certain areas for her, particularly in regards to his communication.

It’s so hard having to focus & discuss all the things he can’t do, it’s hard enough seeing other children his age so much further in their development, talking, playing & doing things for themselves. Actually having to pinpoint the issues really takes it out of you.

My little man is currently around 18-24 months behind in his communication skills, he can’t follow simple instructions, he’s mostly non responsive but he does now have a single word, no! Believe it or not though, this single word has made an incredible difference in our day to day life.

The next step for Archie is to try & build on his speech & communication, he’s already had nine months of speech therapy so things really need to progress if he’s going to attend mainstream school. If he can’t communicate then mainstream just won’t be an option. After observing him the paediatrician is referring up to CLASS, Communication, Lauguage & Autism Spectrum Support. They will be coming into his nursery setting to start working with him & the nursery staff to try & further develop his communication using PECS. I won’t go into detail in this post as I don’t have a great understanding of it at the moment but it’s a picture exchange where he can communicate his needs through pictures.

It wasn’t all negative though as he will be getting the additional support he needs, and we’re very lucky that we’ve got the early intervention. The flip side of this is he’s been moved up the waiting list he is showing severity; Autism isn’t usually picked up until the children are older and displaying more traits. Archie’s showing a high proportion of traits very early, but I just want to focus on the positives. He’s going to be getting the educational support he needs so this is what we’re focussing on at the moment.

At the end of the appointment the paediatrician was satisfied that he meets the criteria for an official MAAT assessment for his Autism Diagnosis although this still can’t happen until he’s three. It’s now just a matter of waiting for the assessment and doing all we can to help Archie develop & grow as our beautiful little boy.

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18 Comments

  1. June 22, 2015 / 11:16 am

    I’ve just caught up with your gorgeous boy’s autism journey to date. It sounds like he’s worked so hard at his speech therapy and I can imagine that learning to say no must have been so helpful for his communication. It’s great that he’s going to be getting more support at nursery now too. Thanks for sharing your family’s journey.

    • June 22, 2015 / 8:33 pm

      Thanks for the lovely comment, it’s been a long hard process for him but hopefully things will start to get easier for our little man x
      gymbunnymummy recently posted…Sunday Sweets | 21st June 2015My Profile

  2. June 22, 2015 / 11:52 am

    It sounds like things are going well and are really positive! So glad he’s getting the support he needs.
    We’re just starting on this journey…..We are waiting for an appointment through for my 7 year old. Can take anything up to 8 months….Ugh! Until then we are just winging it with her…
    Kim Carberry recently posted…Our Weekly Meal Plan!! – #mealplanningmondayMy Profile

    • June 22, 2015 / 8:35 pm

      It’s such a long wait for everything but just keep going with what you think is right. i hope things go as smoothly as they can for you & you don’t have to wait too long x
      gymbunnymummy recently posted…Sunday Sweets | 21st June 2015My Profile

  3. June 22, 2015 / 1:42 pm

    Wow this must be such a draining experience, like you say having to keep discussing his issues, it must be so hard at times. The positive is that you are getting the support that you need as hopefully this will help him improve from a young age as you hear of so many people who weren’t diagnosed until much later. Hugs and thank you for sharing with #MaternityMondays
    Caroline (Becoming a SAHM) recently posted…Little Miss at 8 monthsMy Profile

    • June 22, 2015 / 8:37 pm

      Thanks hun. Yes on one side it’s so hard that he’s showing such strong autistic traits so young but on the flip side this is the reason why he’s getting so much support. I just hope we get the diagnosis soon then we can keep progressing x
      gymbunnymummy recently posted…Sunday Sweets | 21st June 2015My Profile

  4. June 22, 2015 / 2:16 pm

    Popping by from #maternitymondays. I am glad you have found a great pediatrician who is helping you set up everything you need to support you and Archie.
    Loving life with little ones recently posted…Jolly holidaysMy Profile

    • June 26, 2015 / 4:06 pm

      Thanks so much Jess, it’s hard work but when you live someone it just doesn’t matter, you’ll do anything for them x
      gymbunnymummy recently posted…An Emergency OperationMy Profile

    • June 26, 2015 / 4:08 pm

      Thanks so much Caro. I’m just doing what any mama would do for their little ones. It’s hard worth but worth every effort x
      gymbunnymummy recently posted…An Emergency OperationMy Profile

  5. June 24, 2015 / 3:27 pm

    Hugs to you, hun. You’ve done well with Archie and it’s good to know he is getting all the support he needs. xx
    domesstique recently posted…Sleep or Sandwich?My Profile

  6. July 2, 2015 / 1:33 pm

    This does sound like a really positive post and am pleased that there is some progress despite how far behind he might be. Well done for you though, you’ve done so well in what I can only imagine is a difficult journey. I’m sure the older he gets the more support will be given and things will slot onto place a bit more. You all sound like you’re doing so well. Thanks for linking up with us on the #bigfatlinky hope to see you there this week.
    martyn recently posted…Call me Pinocchio!My Profile

  7. July 3, 2015 / 7:56 pm

    Your so amazing looking at the positives of it all its brilliant that he’s going to be getting the support he needs I really hope it helps thanks for sharing op #sundaystars
    Everything Mummy recently posted…A day in the life of a 16 month oldMy Profile

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