Today we’ve finally gotten the news we were waiting for.
Archie has finally, officially been put onto the waiting list for a MAAT assessment for an official Autism diagnosis.
It’s been such a long process with so many hoops to jump through, so many boxes to tick, so many reports to write and far too many sleepless nights worrying, but we’re finally a step closer to an official diagnosis.
I wrote a while back about why it is important for me to have a diagnosis for him. I know it’s not going to change him or who he is but what it will do is open doors for him. It will open up additional support and therapies for him. It will mean our Local Authority will finally have to acknowledge he will need support when he starts school next year, rather than the ‘sink or swim’ approach they told me they wanted to take.
I’ve been so worried about what will happen when he starts school, and still am. Will he have the right kind of assistance, will he be given enough hours with a teaching assistant. Will he be understood or just labelled as the ‘naughty boy’. Autism is so complex, Archie’s needs are so complex, it’s terrifying thinking about what will happen if he’s left to sink.
But after today’s meeting our local Autism specialist will now be involved, which was the final step we were waiting for, without her involvement we weren’t able to access additional resources for him. She came into nursery last week to observe & assess Archie to determine if he meets the criteria to be offered a MAAT Assessment. In today’s CAF meeting, basically a meeting of people involved in Archie’s care, she gave us her report and said she will be putting him forward for assessment. During her observation of him she also noted his ongoing developmental, communication & sensory issues and will be referring him to the dietician as he has a very restricted diet, plus she’s also referring him to occupational therapy due to his issues with mobility. She’s also very concerned that he hasn’t had any speech therapy in over seven months, especially as he’s non verbal and can’t communicate, so she will be chasing this up for us too.
I feel like we’re finally moving forward, that all the battling has been worth it. We’ve still got a long way to go but this is a major breakthrough for us, especially now that we won’t be left to fend for ourselves and Archie will finally be getting some much needed support & therapy.
I won’t ever stop fighting for him but I finally feel that I can take a little rest and recuperate before the next battle begins.