THE NEWS WE’VE BEEN WAITING FOR

Finally the news we've been waiting to hear, we're finally a step closer to getting an Autism diagnosis for our little man @gymbunnymum

Today we’ve finally gotten the news we were waiting for.

Archie has finally, officially been put onto the waiting list for a MAAT assessment for an official Autism diagnosis.

It’s been such a long process with so many hoops to jump through, so many boxes to tick, so many reports to write and far too many sleepless nights worrying, but we’re finally a step closer to an official diagnosis.

I wrote a while back about why it is important for me to have a diagnosis for him. I know it’s not going to change him or who he is but what it will do is open doors for him. It will open up additional support and therapies for him. It will mean our Local Authority will finally have to acknowledge he will need support when he starts school next year, rather than the ‘sink or swim’ approach they told me they wanted to take.

I’ve been so worried about what will happen when he starts school, and still am. Will he have the right kind of assistance, will he be given enough hours with a teaching assistant. Will he be understood or just labelled as the ‘naughty boy’. Autism is so complex, Archie’s needs are so complex, it’s terrifying thinking about what will happen if he’s left to sink.

But after today’s meeting our local Autism specialist will now be involved, which was the final step we were waiting for, without her involvement we weren’t able to access additional resources for him. She came into nursery last week to observe & assess Archie to determine if he meets the criteria to be offered a MAAT Assessment. In today’s CAF meeting, basically a meeting of people involved in Archie’s care, she gave us her report and said she will be putting him forward for assessment. During her observation of him she also noted his ongoing developmental, communication & sensory issues and will be referring him to the dietician as he has a very restricted diet, plus she’s also referring him to occupational therapy due to his issues with mobility. She’s also very concerned that he hasn’t had any speech therapy in over seven months, especially as he’s non verbal and can’t communicate, so she will be chasing this up for us too.

I feel like we’re finally moving forward, that all the battling has been worth it. We’ve still got a long way to go but this is a major breakthrough for us, especially now that we won’t be left to fend for ourselves and Archie will finally be getting some much needed support & therapy.

I won’t ever stop fighting for him but I finally feel that I can take a little rest and recuperate before the next battle begins.




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15 Comments

  1. May 17, 2016 / 6:30 am

    That’s great news! I hope Archie gets the support he needs and you get a clear diagnosis. Then you can stop worrying as much and move forward xx #TwinklyTuesday Fingers crossed for you this week xx
    Baby Isabella recently posted…Beauty and the zombies – Our week in photosMy Profile

  2. May 17, 2016 / 6:49 am

    All the best for your family and especially Archie. Let’s hope he gets all the help he needs and you get some answers and strategies. #TwinklyTuesday

  3. May 17, 2016 / 7:10 am

    That is fab news! Knowing that he’s not going to be let to ‘sink or swim’ (- a rubbish strategy for any child!!) must be such a relief. x #TwinklyTuesday

  4. May 17, 2016 / 8:35 am

    Oh I’m so thrilled for you – I can’t imagine what you’ve been through trying to get the support that Archie needs – I really hope the journey forward continues to be positive #TwinklyTuesday

  5. May 17, 2016 / 2:38 pm

    That is a great news, Toni. Wishin your family all the best. x
    Jhuls recently posted…Pan De SalMy Profile

  6. May 17, 2016 / 6:46 pm

    I’m so pleased Ally passed your blog on for me to read. I feel we are at a similar stage. My daughter is currently going through the testing stage although “mild” as she is verbal it is still a tough process. We have our 2 appointments for an assessment at the child development centre at the end of the month so hopefully will have an even better understanding for when she starts school in September.
    Thank you for sharing your story and I hope he gets all the support he needs.

  7. May 18, 2016 / 10:42 am

    Its sad that there are so many things you need to do just to get a diagnosis! But im happy for you that your nearly there!
    Lx
    http://workingmumy.blogspot.com
    #BloggerClubUK

  8. May 18, 2016 / 1:31 pm

    Well done for fighting so hard for this – I hope that your son gets all the support he needs from now on. #bloggerclubuk

  9. May 18, 2016 / 7:25 pm

    That’s great news. So pleased for you all. Sorry to hear it’s been so stressful. Lovely article. X #TwinklyTuesday

  10. May 18, 2016 / 9:19 pm

    Oh I can completely understand why this means so much, great news that things are finally moving even though it sounds like it hasn’t been at all easy. The autism specialist sounds good…as though she might get a few things moving too like the speech therapy etc. I hope so. #twinklytuesday

  11. May 20, 2016 / 8:42 am

    That’s such wonderful news. You’ve been fighting this for so long, I’m so pleased that you’ll be getting the support that you need and hope it all comes quickly. Your local autism support person sounds wonderful- you must be so relieved to have her on board! Thanks for linking up with #TwinklyTuesday

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