I don’t know how you do it.
I hear this quite a lot, but you do, do it. You have to. No one else is going to do it for you.
Being a parent of a child with special needs is hard work but so is being a parent to any child. Nobody has it easy, and yes there are other obstacles we need to overcome, extra issues. Some days are absolutely crazy and you’re running on empty, but you just keep going because what other option is there?
You have to deal with the therapy, the meltdowns, the sensory issues, the problems with food, the lack of sleep. You have to work, a business to run, a house to keep clean, laundry to do, kids to look after…
The hardest days for me are the ones when we’ve had no sleep. Archie just doesn’t need sleep in the regular way. He’s never slept through the night, now he’s three his sleep is worse than when he was a newborn. In fact a good night is him waking about five times a night. A normal night is him waking around 7-10 times a night, and a bad night, well I might not even get to bed. He regularly pulls an all nighter, sleeping from about 8pm until 11ish then awake literally all night maybe falling back to sleep about 7am for an hour or so.
How do you function on such little sleep? You just keep going. Some mornings I’ve been stood in the kitchen trying my hardest to figure out how to make a cup of tea. You’re so tired you know what you want to do, you just can’t quite figure out how. These are the days when you feel like you can’t keep going, that you are done, that you have nothing left to give.
Then you get a cheeky smile from the little boy that struggles with eye contact.
You get a ‘ma mam ma’ from the little boy that can’t talk.
You get a cuddle from a little boy that has issues with touch.
Your heart fills with a love so strong that it can get you through anything.
You put the kettle on and get on with your day knowing that little boy is so special. That you are the most important thing in your kids life. That your boys are your reason for living.
Yes it’s hard and sometimes I don’t know how I do it, but then I look at my kids & I know. I do it for them.
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