WHY I FEEL LUCKY MY SON IS GOING TO A SPECIAL NEEDS SCHOOL

Why I feel LUCKY my son is going to a Special needs school. We've had to fight so much to get him he right support and now he will finally be getting some assistance and support for his Autism & eductional needs

I feel so incredibly lucky that my little man has been offered a place at a Special Needs school. So so lucky, because so many children don’t get the right educational support.

So many parents have to fight pretty much every day for their child to get an education.

We’ve had to fight for the past few years for Archie to get some support. He hasn’t had any speech therapy in almost a year even though he’s non verbal, because he requires specialist speech therapy and there aren’t many therapists in our area that are trained in PECS (a picture exchange method of communication that has shown to be effective for children with Autism). So because he has greater needs he has to wait longer. He’s almost four years old and still can’t communicate but we have to fight the system to try and get this help for him.

We’ve had to battle to get him on the waiting list for a MAAT Assessment for his official Autism diagnosis even though all the professionals involved already agree on the diagnosis. It can’t be ‘official’ until hurdles have been jumped, boxes have been ticked and red tape manoeuvred.

Why I feel LUCKY my son is going to a Special needs school. We've had to fight so much to get him he right support and now he will finally be getting some assistance and support for his Autism & eductional needs

There are so many meetings, so much paperwork and so many appointments. Parents are tied up in red tape, budgets are being cut & Local Authorities are refusing & restricting funding for so many children with Special Needs. Our LA wanted to take a sink or swim approach to Archie’s education which I was not going to let happen. Thankfully Archie’s private day nursery agreed with me and fought for his needs to be discussed at the Early Years Panel.

So much paperwork followed, a twelve page report of our concerns had to be filled out. We had to gather supporting documents from professionals involved with Archie and finally after waiting months Archie’s needs were discussed. The response? They were going to monitor him. I was devastated but at least we’d made a step forward. The nursery & I continued with the monthly progress reports & updates, repeatedly expressed our concerns then out of the blue I received a letter from the Early Years Panel. They recommended he starts at our local Special Needs school.

Why I feel LUCKY my son is going to a Special needs school. We've had to fight so much to get him he right support and now he will finally be getting some assistance and support for his Autism & eductional needs

Were we upset? Shocked?

No.

We were happy. Happy that Archie will finally be getting the right support through his new school. Happy that he’ll finally be getting specialist speech therapy through his new school. Happy that he’ll be getting occupational therapy through his new school. Happy that he’ll be with teachers & teaching assistants that understand his needs. That get his developmental delay, that can understand is complex sensory issues.

We’re happy and feel so lucky that he’ll be getting the early intervention that can make a huge difference to children with Autism, because not all children with Special Needs get the right support for them. Without this school I have no idea when my little man would be getting the additional therapy that he needs.

We don’t know what the future holds, or even if he’ll stay at this school after the foundation stage but we’re just so happy that he’s on the right path.

Have you experienced anything similar? How would you feel if you were in our shoes?

Diary of an imperfect mum

Follow:

13 Comments

  1. June 30, 2016 / 1:11 pm

    It’s great that you got a decision that you are happy with. Hopefully your son will be in an environment that can support him to fulfil his potential- it certainly sounds like he will be. We are waiting to find out if my son will get SNA support in School next year, am really concerned he will fall behind if he doesnt. #brilliantblogposts

    • July 2, 2016 / 10:05 am

      This was my main concern as our LA wasn’t wiling to start the ECHP process until he started school next September. Now he’s got this nursery place at our local SEND school they’ll be starting the process plus he’ll already be in an environment that understands his needs & complex issues. I really hope you get the support you want, I really wish we didn’t have to fight so much x
      gymbunnymum recently posted…3 BASICS TO BOOST YOUR INSTAGRAMMy Profile

  2. June 30, 2016 / 3:58 pm

    Oh my, this sounds really tough but I am glad that you are happy with the final outcome! I hope your son will be happy at his new school. : ) #brillblogposts

    • July 2, 2016 / 10:06 am

      Thanks so much. We don’t know if he’ll be staying there in the long term, hopefully he will, but at least he’s on the right path x
      gymbunnymum recently posted…3 BASICS TO BOOST YOUR INSTAGRAMMy Profile

  3. July 3, 2016 / 7:48 am

    This reminds me of what my mum went through with my brother. There were different levels of schooling too, so finds the right one took time but we got there. He has come such a long way. I’ve always had faith and hope and he’s doing amazingly well. Great to hear you have found somewhere for Archie. Whilst it’s stressful with paperwork
    Etc it’ll be so worth it. Best of luck to you all and I look forward to reading the updates. Xx

  4. July 6, 2016 / 12:16 pm

    I think congratulations are in order here!! Having been a teacher I know all about how important it is for kids to be in the right learning environment and that is different for every individual child. Congrats to you and ENJOY ARCHIE!!

    Thanks for linking to #ablogginggoodtime
    Mummy in a TuTu (@mummyinatutu) recently posted…How Do You Love Yourself?My Profile

  5. July 7, 2016 / 7:03 pm

    My daughter with Cerebral Palsy will be starting the process this fall to start school. Makes me nervous that she will get the proper help she needs to do her best. Best of luck to you!

  6. July 8, 2016 / 10:54 am

    I’m so glad your son will be getting the individualised education he needs. I teach in a special needs school and when first started was amazed by the results from PECS and Manaton. The young children and young adults I have had the pleasure of working with have truly impacted only life and it’s an honour to be able work with them in a positive, nurturing and individualised learning community. Go Archie! #ablogginggoodtime

    • July 8, 2016 / 8:18 pm

      You sound like a fab teacher, exactly the kind I want working with my boy. The teaching staff just get him and his little traits so I really hope we’ll see progress soon and maybe even a little communication from him 🙂
      gymbunnymum recently posted…HOW TO MAKE WORKING FROM HOME WORK FOR YOUMy Profile

Leave a Reply

Your email address will not be published. Required fields are marked *

CommentLuv badge