ARCHIE’S AUTISM JOURNEY #1 – THE PAEDIATRICIAN APPOINTMENT

autism_lining_toys

If you follow me on Twitter or are a regular reader you may know that our little man has been having developmental issues, particularly around his speech & language, social & emotional development. He’s just turned two but is about 12-13 months behind in development although with his physical development there’s no issues at all, this kid can sort his toys and build towers like nobody’s business!

At the moment all the signs point to Autism as agreed by the Health Visitor, Speech Therapist & nursery which led to us being referred to the paediatrician. Finally after weeks of anxiety & anticipation today was his appointment. The paediatrician was great and the appointment lasted just over an hour. His nursery was asked to fill in a number of forms around his development which would help assist, and after us explaining our concerns and the report from nursery the Dr agreed that there is some serious development issues that need to be addressed.

Archie doesn’t speak at all, no baby babble, mamas or dadas, nothing, which is so frustrating for him and leads to lots of screaming when he can’t communicate what he wants. The other side of this is that he also doesn’t understand us and has no boundaries which is so, so dangerous for him.

He can physically walk but there’s no way I can take him out without the buggy, unless we’re somewhere safe like the park, as he runs off after the slightest thing that catches his eye, he doesn’t understand that he has to hold your hand or stay close. I have tried him on reins & the backpack style reins but these just send him into total meltdown. He can’t stand them around him and just drops to the floor & refuses to move, and to add to the stress his buggy has just completely snapped with him in it!

I do have a little stroller but this causes major issues for him as he refuses to sit in it, he much prefers the height & space of our Mamas & Papas Sola, and if I can eventually get him in it there’s no way I can use the raincover or hood as this just freaks him out and causes another meltdown which includes trying to tear the raincover off & lot’s of screaming & tears. The raincover on the larger buggy is not as much of an issue as there is much more space between him & the plastic. So I don’t know what we’re going to do until we can afford a new one, typically the larger ones cost more money.

He has issues with social relationships and won’t interact with people he’s not very familiar with, even his grandparents can’t get a cuddle. He doesn’t make eye contact, which increases his communication issues as we’re currently trying sign language but without eye contact and gaining his attention it’s a struggle but we’re determined to do all we can to help him. At nursery he chooses to  run around independently when the other children are having group time and spends most of his time independently lining toys up or building towers, he can even get quite physical when other children try to actively play with him, biting, scratching, hitting etc which is a major issue in itself as we don’t want this to progress as he gets older.

Whilst the paediatrician agreed there’s serious developmental issues that do need treating, she also said that two is too young for an Autism diagnosis even if he is showing all the classic signs. At this stage she is going to write a full report, which will outline his issues & what developmental help he will need going forward, which will be a combined treatment approach such as continuing with his speech therapy, behaviour therapy & occupational therapy. Basically his developmental issues will be treated accordingly with a plan to address his specific needs but they won’t ‘label’ him at this age, although he will be under an ongoing review.

So until we get the report we’re still in limbo as we don’t know what we’re supposed to do to help him but thankfully things are progressing & he’s ‘in the system’ so to speak. All we can do is continue as we are, doing the best we can. We have a happy, healthy little boy and for that I’m so thankful.

Brilliant blog posts on HonestMum.com

Follow:
This Mama Blogs

Life & Style for Busy Mums • Finding my style again • Lover of fashion & makeup • Autism Mama • Mum bun wearer • Slimming World Foodie • Partial to a G&T • Shops a little too much… • contact thismamablogs@gmail.com

Find me on: Web | Twitter | Facebook

14 Comments

  1. November 6, 2014 / 9:02 am

    Gosh it’s really quite a journey. How do you feel about the lack of being able to ‘label’ right now! I mean I guess there are lots of positives and frustrations with it!? Hope you don’t have to wait too long for the report xx

    • gymbunnymum
      Author
      November 6, 2014 / 11:16 am

      It could be 2 years plus before we get a diagnosis as they like to wait until they’re at least four, it could be even longer so this part is really frustrating as all we can say is ‘if’ he has Autism. The positive is at least everyone is in agreement that he needs help with his development issues & we’re starting early x

  2. November 6, 2014 / 10:08 pm

    You are doing amazing job as a parent helping him through this as I can imagine it is much of a struggle for you all when communication is concerned.
    It’s fantastic that you have started the help already!!

    • gymbunnymum
      Author
      November 7, 2014 / 6:17 am

      Thank you, well meaning family & friends told me not to worry & he’ll progress in his own time but I’m so glad that I pushed it now. I knew things weren’t right & I’m so glad I didn’t wait x

  3. November 8, 2014 / 9:10 am

    Ethan was two when the penny dropped for me that he was autistic, he also has a few other diagnosis to go with that. He got his diagnosis Feb 2013, he was three in the May. You sound like you are on the right track with help, we don’t get OT here but have had great pre-school support that ends soon :0(. I wish you luck on your journey, if you ever need to have a moan you know where I am x x x

    • gymbunnymum
      Author
      November 8, 2014 / 9:14 am

      Thanks Jane, the support we’ve had via blogging/Twitter has been incredible & I’ve learnt so much. Archie goes to an amazing private nursery 10 hours a week and they have been incredible with their support & assessments etc. I think we’ve been very lucky to have been taken seriously so on. Thanks again xx

  4. November 10, 2014 / 7:22 pm

    Must be so hard not to know everything straight away but good thing you followed your gut and got the help you needed to find out what’s best for him. That’s amazing Momma. Sounds like you now know where to go from here which is more reassuring than people just saying it’s nothing I bet. Bless. Thank you so much for linking up to Share With Me. #sharewithme

    • gymbunnymum
      Author
      November 11, 2014 / 8:03 am

      It is so hard, but I just have to remember that we’re ‘in the system’ so at least things are progressing. Thanks for the lovely comment

  5. November 11, 2014 / 10:30 am

    Wow a long journey and can imagine hard on you all, the limbo time is the worst, sending hugs and that you get answers soon! Thanks for linking up to #brilliantblogposts

    • gymbunnymum
      Author
      November 11, 2014 / 3:04 pm

      The limbo is definitely the worst, although at least our Health Visitor has now said they will refer to his ‘autistic tendencies’ until we have a formal diagnosis so at least that is some progression. x

Leave a Reply

Your email address will not be published. Required fields are marked *

CommentLuv badge