This week has been completely full on, so much has happened and changed in regards to Archie & his Autism journey, so what comes next? To be honest I still don’t really know, we’re kind of in limbo at the moment as he’s too young for an official Autism diagnosis even though all the professionals involved have agreed that he is displaying autistic tendencies, we just can’t ‘label’ him with Autism just yet.
We’ve now received the ‘report’ from his last paediatrician appointment, which is basically a letter that tells us exactly what we told the paediatrician so very helpful there! Although to see the positive side of it, it does clearly state that he is experiencing a significant delay to communication & social skills. Now we have this report the Health Visitor has confirmed that Archie has Special Educational Needs and needs additional support to get him ready for when he will start nursery, plus it’s highly likely that he’ll continue to need support in his education but at this stage we just won’t know to what extent until he gets a little older.
The main points of concern at the moment is his lack of communication, he is completely non verbal but also doesn’t seem to understand us either. He can’t communicate his needs which leads to him getting frustrated and having major tantrums him and even getting violent with both us and himself. It’s so heartbreaking to see as it’s not him being naughty as some people see, it’s him trying to express himself. The Speech Therapist has decided that he needs more intensive weekly sessions as he’s not progressing as she’s like but as he made a recent breakthrough watching Mr Tumble and appears to respond better to visual cues. We’re hoping that sign language will really help him as once he has some form of communication he may be able to understand better which will help with the danger/safety aspect as at the moment he has no self awareness.
We have another review with the paediatrician in six months to see how he has progressed, although again this probably won’t lead to a diagnosis just yet. We just have to continue working with our Health Visitor, tracking his progress & any changes to his condition, plus she’s going to begin to put some specific targets in place so we can focus on small steps at a time & keep a clear record of progress (or lack of it). The frustrating part of this is that it’s such a long process and without a diagnosis it’s all ‘if’s & but’s’ so we still don’t really know what to expect, we just have to take things day by day and hope for the best. At the end of the day we have a beautiful, amazing little boy and I just want to get him the help & support he needs to give him a happy & healthy future.