You probably read this title & thought WTF, but keep reading and you’ll understand why I want my little boy to be diagnosed with Autism.
We’ve been going through our Archie’s Autism Journey for almost a year now, having numerous appointments (far too many to list), seeing numerous specialists & doctors. Archie currently has 12 people involved in his care, two paediatricians, four speech therapists one who specialises in Autism, a Health Visitor, a SENCO worker, a key worker and he’s also seeing specialists at the hospital in Orthopaedics, ENT & a Dietician. He has been ‘unofficially’ diagnosed with Autism, meaning that the specialists involved in his care have agreed & are treating him for Autism but he’s too young for an official diagnosis.
Yet I still get told by people we know that Archie can’t possibly have Autism, you might want to have a nosy at my 20 Things Not To Say To A Parent Of A Child With Autism, you wouldn’t believe some of the ridiculous things people say.
I want Archie to be officially diagnosed so that I have it in black & white when people tell me I just need to socialise him more, or he just needs to get used to certain textures. Archie has a sensory processing disorder, this affects his brain & functions, this has nothing to do with my parenting skills.
I want his official diagnosis so they can’t deny it any more, so they can’t tell me I’m wrong. Autism is so complex, for someone who sees my child for an hour here & there probably won’t see how his Autism affects him. I’m there all day every day so I see all his traits. There wouldn’t be so many people involved in his care if it was all in my head. Someone recently told me that they’ve never seen him have an issue with the texture of his clothes. Well no, you won’t do. Why would I keep him in clothes that distress him?
I know I shouldn’t need a piece of paper to satisfy other people but it is so draining to have to constantly battle with people every day who have no idea about Autism. Just because you can’t see it immediately doesn’t mean it’s not there, it just means you haven’t spent enough time with my beautiful little boy to see it.
Can you relate to this? Have you been in a similar situation, I can’t be alone in thinking like this.
I’m joining in with these lovely linkies